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๐Ÿฐ Happy Easter! ๐ŸŒท Wishing you a blessed and joyful Easter! ๐Ÿ’• You can now share your good days and bad ones on the Faces of Hypopara tab. Check it out and let's see the Faces of Hypoparathyroidism!

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Community Testimonials

Real stories from patients, advocates, and community members

Patient Testimonials

2/26/2026

Bari's writing helped me realize I'm not alone in this journey. Her honesty about the daily struggles with hypoparathyroidism gave me hope when I needed it most.

Sarah M.

Patient Advocate

2/26/2026

Reading about Bari's experience as Patient #1 in the clinical trial inspired me to never give up on finding better treatment options. Her courage is contagious.

James T.

Clinical Trial Participant

2/26/2026

Bari's advocacy work has transformed how I think about my diagnosis. She's not just a writerโ€”she's a beacon of hope for our entire community.

Jennifer R.

Patient

2/26/2026

As someone newly diagnosed, Bari's columns were the first thing that made me feel less alone. Her journey gives me confidence for my own path forward.

Michael T.

Newly Diagnosed Patient

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Community Testimonials & Feedback

3/4/2026

THANK YOU FOR ALL YOU ARE DOING! YOU ARE A WONDERFUL RESOURCE, AND I AM HAPPY I FOUND THIS SITE. THE RECIPIES ARE GREAT. I LOVE YOUR PLAYLIST AND GIFT IDEAS! SEEING YOU LIVE YOUR LIFE FULLY EVEN THOUGH YOU ARE SICK IS SO INSPIRING.

LYN

2/28/2026

although Bari and my child face different rare diseases, her story and her journey have given us hope and leanred from her to fight hard and never lose hop. her stories are inspiring snd are so helpful to anyone facing adversity. thaank uou Bari for being so honest. you are a true warrior snf inspirtiom. keep fightimg. you will make a diffrrence with your honest nsrrative.

lisa d

mother of rareb disease paitent

2/26/2026

Bari's columns about balancing motherhood with hypoparathyroidism showed me that it's possible to be a great parent while managing this condition. She's a true inspiration.

Maria L.

Mother of Two

2/26/2026

The roller coaster metaphor in Bari's writing perfectly captures what living with hypopara feels like. Her determination reminds me to keep going, even on the hardest days.

David K.

Community Member

2/26/2026

Bari's speaking engagements and writing have changed the conversation around hypoparathyroidism in our community. She's making a real difference.

Lisa P.

Healthcare Professional

2/26/2026

The authenticity in Bari's storytelling is remarkable. She doesn't sugarcoat the challenges, but she also shows us how to thrive despite them.

Robert H.

Support Group Leader

2/26/2026

Bari's work has been transformational for me. Her vulnerability and strength inspire me every day to keep fighting for my health and my dreams.

Anonymous

Community Member

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